What is PCPLC?

The Pediatric Colorectal and Pelvic Learning Consortium (PCPLC) was organized in 2016 as an international consortium of surgeons, scientists, and other specialists in order to facilitate research on anorectal malformations, Hirschsprung disease, and other colorectal and pelvic disorders. The PCPLC includes clinical centers and a central data coordinating center, with members organized into a Steering Committee, subcommittees, and working groups. The PCPLC maintains a detailed registry of patients and provides the infrastructure for conducting focused studies.

 

Mission

Improve the care of patients with anorectal malformations, Hirschsprung disease, pelvic anomalies, intestinal dysmotility and fecal incontinence

 

Facilitate collaborative research through:
  • Defining evidence-based best clinical practices
  • Creating an international patient registry
  • Promoting the career development of our members
  • Engaging in multi-disciplinary collaborations to enhance patient care
  • Teaching through educational programs among participating clinical sites and other centers

Aims

  • To perform multi-center prospective clinical trials to definitively answer questions which require a larger number of patients than treated at any one center
  • Translate the findings from clinical trials into everyday practice
  • Provide opportunities for trainees and junior faculty in multiple fields to become involved in multi-center clinical studies to facilitate their career development
  • Create an infrastructure to disseminate information obtained from outcomes research to providers caring for these patients